Support
Dysphagia Support Groups
The National Foundation of Swallowing Disorders organizes free online support groups. Here are links to their adult group and their pediatric group. They also have a great list of diagnosis specific organizations that facilitate peer-to-peer mentorship opportunities which is another way to connect with other individuals/families with shared experiences in dysphagia.
Tube Feeding Support
In the event that you or your loved one receives part or all of your or their nutrition/hydration by means of tube feeding, here are some organizations that provide support and resources:
Tube Feeding Awareness — Tube feeding basics, practical tips, info on supplies, troubleshooting, and a massive Facebook community.
Feeding Matters — This is a website that caters to families with little ones who require tube feeding. They have some interesting looking programs, including a program that matches you with a qualified “coach” who has first-hand experience with managing tube feeding at home.
Real Food Blends — Inspired by their experiences with their tube-fed son, this company was formed by a couple and sells tube feeding formula free of preservatives and corn syrup that is covered by many major insurance plans.
Diagnosis Specific Support Groups
Below you can also find links to local support groups that are not specifically for dysphagia, but that revolve around medical diagnoses that often involve dysphagia: